- Strawberry - I’m in love with you.
- Cherry - I love you.
- Watermelon - I think you’re cute.
- Blueberry - You’re amazing.
- Kiwi - You’re pretty
- Rasberry - You’re hot.
- Plum - I would fuck you.
- Paopu Fruit - I would date you.
- Grapes - I could stay on your blog for hours.
- Starfruit - You are my tumblr crush.
- Orange - I want to get to know you.
- Tangerine - We have a lot in common.
- Lemon - I wish you would notice me.
- Lime - I don’t talk to you but I really love your blog.
Sometimes when I wake up I can’t move my legs for a while. It’s called sleep paralysis. It used to scare me. Now I just think…
It’s weird how easily you adapt and start seeing your illness as “normal.” I even feel weird saying I am sick because it all feels normal to me now. I only say I am sick when I am sicker than my normal amount of sick.
I forget what life was like when I didn’t have to spend most of my day in bed. When I could just go to the store to pick up a few things. When i could leave the house without it being a huge undertaking. When getting a shower wasn’t a test of stamina.
I saw this post in my facebook feed.
I hate this.
If I could just eat salad and be well, I would have been well over a decade ago. So many people with chronic conditions are told by non-doctors (and apparently tshirts now) they can just eat right and be better.
Things like this make everyone think they can tell you it is your fault you are sick. I have taken the supplements. I have done the diet. I have exercised as much as my body would allow. Even so, people are still skeptical. They think I didn’t exercise hard enough. That I cheated on my diet. That I didn’t reeeeally try these things. Because if I did, this tshirt says I would be all better. Right?
Even when I assure certain people that I spent a year eating the healthiest diet imaginable. That I pushed myself to exercise to the point of exhaustion for months. That I did all the right things and did not cheat even a little… they still don’t believe me. They think if they had my medical issues, they would have some magic willpower that would allow them to escape the bonds of illness.
It’s frustrating when people tell me I can take vitamins and fix a neurological disorder and defective mitochondria. There is no treatment for the conditions I have. There just isn’t.
Not to mention the side effects mentioned are very uncommon with those pills and some of the pills aren’t typically used to treat those conditions. And, I’m sorry, but chiropractic treatment has no strong evidence it helps with anything other than making a cool popping sound with your bones.
This tshirt is a thing a lot of people think makes sense and is accurate, but any doctor would tell you it is mostly BS. You could easily substitute several of these meds for other meds and not have side effects.
Healthy diet and exercise is great for people who are well enough to exercise. But suggesting it is a cure for serious illness is dangerous and makes some people think they can avoid seeing the doctor if they just go for a run.
“Just so everyone is aware, there is a bunch of misleading info being spread around re: ALS research - the “27%” figure is based on previous years’ annual funding; furthermore, the remainder goes to improving the quality of life of those suffering from ALS. Given that the annual funding is approximately 16M, that’s just over 4M spent on decreasing their suffering. It isn’t greed, it’s a lack of money.”
Shut up already.
And the next time you start to complain about a charity either a) working on multiple fronts (because that’s what ALSA does—both seeking a cure and helping people suffering now) or b) daring to have administration expenses—let’s see how long you can last, much less tackle a cause, without printer paper and an internet connection.
As someone who has watched a family member die from a neuro-degenerative disease; funding to develop better wheelchairs and bedsore creams is *just* as important as funding research to cure the disease itself…
A friend of mine posted an update from one of HER friends to FB earlier. Her dad has ALS. The ALS foundation came out to see if they could put in a ramp for his wheelchair, but they couldn’t afford it because of the kind of ramp he needed for the kind of house they had.
This week they called back and said hey, the thing is, we suddenly have a bunch of money, so we’re coming out to build that ramp. And they did. She posted pics.
So if you feel like bitching about the ice bucket challenge…reconsider.
it’s what it says on the tin. please watch this
i’m the biggest baby the musical